Expanding the Definition of Care for HIV Long-Term Survivors
Jeff Berry didn’t choose a career in HIV advocacy, the career chose him. After being diagnosed with HIV in 1989, Berry stumbled upon Positively Aware, a magazine providing critical information on care and treatment options, during a support group meeting.
Leafing through its pages, he realized how important it was to have a place to get information specifically tailored for survivors.
Before long, he’d launch a career at the magazine for nearly 30 years, a position he held until a few years ago when he left to lead The Reunion Project, a national alliance of HIV long-term survivors that he co-founded in 2015 and is focused on addressing the unique care and treatment needs facing the growing community. “We launched The Reunion Project when a lot of people were starting to gather and talk about the distinct challenges long-term survivors face,” Berry explained. “It hadn’t really been discussed previously.
Many were still dealing with the trauma and loss of the epidemic, but enough time had passed where we could revisit and focus on the specific needs of those of us aging with HIV.” As we mark Long Term Survivors Day on June 5, honoring the resilience of this community and raising awareness about the challenges they face becomes even more crucial.
